We have a very fun update to share with our members and followers! We were so excited to be able to choose a THIRD wish recipient this year – due to the success and support of Party with a Purpose: Talk Derby to Me. Introducing… Madelyn (Maddie)!!
Maddie and her family’s wish was to makeover her bedroom. Who among us doesn’t love a little home makeover!?!?!
Maddie’s wish was just granted and you’ve got to check out the darling pictures of her and her new room! Thank you to everyone who helped make her wish come true! You can also follow Maddie’s progress Mighty Madelyn’s Facebook Page
Maddie’s been sleeping in mom & dad’s room since birth so they could keep a close eye on her at all times. Mom picked out a bed, fan & lights, curtains, décor, dresser, closet organizer/shelves and she got a fresh coat of paint, too!
Stay tuned to hear updates on our other two 2018 Wish Kids, Cathleen and AJ!
She’s so excited!
A room of her own!
See more amazing photos (and video) on Maddie’s page!
Here’s Madelyn’s story (in her mom’s words)
Madelyn was born on October 28, 2016. She was closely monitored while inside the womb. She was not growing at the same rate as her Twin Brother, Dylan. They were concerned she would be delivered very early so I (mom) was given a steroid shot to improve her lungs in the case she would have to be delivered early. Maddie and Dylan did come early at 37 weeks with a planned C-Section for 38 weeks. She was 4 lbs 5 ounces at birth. We were able to hold her for some time and then she was taken to the special care nursery for low birth weight, low blood sugar, and feeding issues. She had a feeding tube and once she was able to eat successfully on her own, she was able to go home and join her brothers, Dylan and Trevor, Mom , Dad, and puppy Lucy. We were so glad she was home and growing. When Maddie and Dylan were around 6 weeks, I took a picture of them (I take A LOT!) and of course posted it on Facebook. Kind people reached out and called my mom and mother-in-law with concerns of Miss Maddie’s (that is her nickname given by her big brother Trevor) coloring in the picture and asked if she had been tested for Jaundice. They then called me and we decided to call the Doctors office and chatted with a nurse. She suggested bringing Maddie to the ER. We then headed to the ER on December 16. There they ran a bunch of tests and her bilirubin was very high. They did an ultrasound of her liver in the ER and took more blood to run more tests. The Doctor then came in and told us that we were being admitted to the hospital for further testing. Once we got to the room the admitting Doctor went over everything with us. Maddie would need a biopsy of her liver that next morning. She had her biopsy and was doing well after. They rushed the results and we found out hours later that Maddie has Biliary Atresia.
Since then, Maddie has endured a liver transplant and has been diagnosed with Post-transplant lymphoproliferative disorder (PTLD) – a form of cancer.